RESOURCE HUB

Our resource hub is a platform from which you can download helpful documents relating to sickle cell disease. It is designed to support you and to make life with your condition easier.

These documents may provide you with additional support in your everyday life. However, they are not a replacement for conversations with your treatment team. Contact your treatment team to get targeted tips relating to your personal situation. You can also visit our Community page to find support in your area.

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        Clementine and Giuseppe laugh and talk. There is a plant in the background.
        Living with sickle cell disease: top tips for your self-management
        With these top tips, you can actively manage your condition and take action yourself.
        Close-up of Renna looking something up on her cell phone.
        Your treatment diary
        Use this diary to record all treatments and symptoms so that you have an overview of your condition. It can also help you to cope better with difficult times.
        Die Webseite Realtalk! Sickle Cell soll Dich bei möglichst vielen Fragen rund um Sichelzellkrankheit unterstützen.